SODA Project

SODA Project
Realising Data together with people living with dementia.

SODA Project is the Lancaster section subcontracted from EU2020 SODA – scalable oblivious data analysis project, that is researching and developing data sharing technologies using Multi-Party Computing Technics (MPC).

 MPC have the potential to offer ‘real time’ use of data and ‘live’ data comparison without sharing data, instead making data available for encrypted processing. To support MPC innovation, it is critical to understand perceptions and practices of data generation, sharing and processing and to support people in understanding its potential and risks.

 Data transactions, far from neutral, are subjected to gender, class, race, personal history and contextual politics. Data subjects may or may not understand when and how they are providing data, what data sharing implies or even what data is. At the same time, data subjects have ideas, feelings and imaginaries, as well as diverse interests and concerns about data. At these intersections, a range of frictions arise.

 SODA Project explores the spaces and knowledges emerging from using and designing medical data together with people living with dementia, caregivers, medical professionals and stakeholders, in the wider ecology of the social and material worlds of practicing wellbeing.

 The project focuses on perceptions of what data is and practices of making (sense of) data, fears and perceived benefits of data sharing technologies, specifically multi-party computing technics (MPC).

Project Team

Luján EscalanteLuján Escalante Malé Luján Escalante Ethics through Design, Creative Exchange, Digital Public Space, Philosophy of Technology, Feminist Techno-science, Mobilities
TseklevesTsekleves Emmanuel Tsekleves Design for Health & Wellbeing, Design for Ageing, Design Interactions, Global Challenge Design, Design Fictions, Playful Design, Digital Design
No picture available Prof. Monika Buscher Professor of Sociology, Director of the Centre for Mobilities Research and Associate Director for the Institute for Social Futures at Lancaster University.

Partners / Funders

Project Partners

Project Funders

Updates

Realising Data Together with people living with dementia

OutcomeReport
Realising Data Together with people living with dementia

Soda project ran a series of collaborative creative activities with people living with dementia and their caregivers. The workshops were exploring perceived ideas, fears and potentials of data sharing in the context of dementia.  ...More information

BIG HEALTH DATA & Privacy Preserving Practices

BIG HEALTH DATA & Privacy Preserving Practices

Ethics through Design Workshop – 28thNov. 2018, 09:00 – 16:30, ImaginationLab, Lancaster University

Big data has big potential for healthcare. From epidemiological analysis to early diagnosis, the datafication of life opens up new opportunities for preventative, diagnostic and therapeutic...Read full update

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